You sound perfect for them Juanna
The email should go to prems@cihi.ca
You and your family certainly have had a rough time during Covid. I hope you are all doing better now.

Annette

Thanks Annette, it’s a wonderful team to work with. Appreciate your interest in this project.
Take care!

Thank you, Amy and Annette! I will follow up.

They're also having a webinar

Building Canada’s Rare Drug Program: A Boldacious Billion$ Investment
Webinar: Learnings and Unresolved Issues

November 1, 2021 @ 12-1 pm EDT
Registration: https://bit.ly/3AR96EQ

Every Patient Counts: No one Left Behind

As Canada moves to implement our first National Rare Disease Drug Strategy, we can draw upon our experiences with ad hoc and deliberate access solutions for rare and other innovative therapies. But, with some 100 public prescription drug plans and over 100,000 private plans, most of these bespoke initiatives have not engendered blueprints or templates for successive emerging therapies. Unlike countries such as Germany or the Netherlands, each of our plans chooses which drugs and under what circumstances they will fund, or not. Singular targeted programs have not given rise to substantive changes in the drug and healthcare ecosystem essential to facilitating efficient, effective, and cost-effective managed access to innovative drugs for small rare populations. Not surprisingly, patients in different provinces, covered under different plans, or working for different employers may have differential access to very different drugs.

CORD is convening a roundtable of multistakeholder panelists who will consider from their respective perspectives notable access schemes crafted to address specific rare drug challenges and what we can learn from these.

Kudos to your daughter in law. I look forward to seeing Night Raiders when my grandchildren from the Twin Cities, MN finally come north for a visit next week.

Troy, I have indeed seen it which is why I hope as many as can take up this opprtunity. You have described it and its importance well. Alies

that's fabulous - bravo to you ! Please do share it, Donna

Here's a link to a cautionary tale in the US where interoperable platforms and private companies with black box algorithms cause real harm to people in chronic pain.
https://www.wired.com/story/opioid-drug-addiction-algorithm-chronic-pain/