Canadian Organization for Rare Disease Conference - Dec 1 & 2nd

[A Former User]

CORD Fall 2021 Conference Dec 1 & 2 #Canada4Rare
Draft conference outline: https://bit.ly/2Z9VYx8
Registration: https://raredisorders.wildapricot.org/event-4535838
Complimentary registration for patient/patient group representative

[A Former User]

They're also having a webinar

Building Canada’s Rare Drug Program: A Boldacious Billion$ Investment
Webinar: Learnings and Unresolved Issues

November 1, 2021 @ 12-1 pm EDT
Registration: https://bit.ly/3AR96EQ

Every Patient Counts: No one Left Behind

As Canada moves to implement our first National Rare Disease Drug Strategy, we can draw upon our experiences with ad hoc and deliberate access solutions for rare and other innovative therapies. But, with some 100 public prescription drug plans and over 100,000 private plans, most of these bespoke initiatives have not engendered blueprints or templates for successive emerging therapies. Unlike countries such as Germany or the Netherlands, each of our plans chooses which drugs and under what circumstances they will fund, or not. Singular targeted programs have not given rise to substantive changes in the drug and healthcare ecosystem essential to facilitating efficient, effective, and cost-effective managed access to innovative drugs for small rare populations. Not surprisingly, patients in different provinces, covered under different plans, or working for different employers may have differential access to very different drugs.

CORD is convening a roundtable of multistakeholder panelists who will consider from their respective perspectives notable access schemes crafted to address specific rare drug challenges and what we can learn from these.