BC SPOR Support Group - Working Group to Dec 2016

[A Former User]

From an email I got: Apply here bit.ly/2aD5bRg

"Patient-Oriented Research" is probably a phrase you've been hearing more and more often. This is your chance to get involved and help to shape the future of patient-oriented research in BC!

• Open to volunteers across the province

• RSVP by noon on August 12th

Opportunity Name:

BC Support for People and Patient-Oriented Research and Trials (SUPPORT) Unit Patient Engagement Working Group

Lead Organization/Department

BC SUPPORT Unit

Aim

The SUPPORT Unit Patient Engagement Working Group is being established to develop a plan for how to most effectively engage patients in the work of the BC SUPPORT Unit overall. We believe that patients themselves can contribute vitally important perspectives on where and how to best engage patients in the work of the BC SUPPORT Unit.

Level of Engagement

This opportunity is at the level of involve on the spectrum of engagement (www.iap2.org). The promise to you is that the health care partner will work with you to ensure that your ideas and concerns are reflected in recommendations and provide feedback on how your input affected the decision.

Eligibility

• Open to volunteers from across the province

• We seek diversity in terms of age, gender, ethnicity and region of the province.

• The ability to grasp abstract concepts and to absorb relatively large amounts of information is also important.

• Experience as a patient volunteer in Quality Improvement is essential.

• Specific experience as a patient partner in health research would be an asset.

• PVN members need to have previously attended a PVN orientation session.

Logistics

• Number of vacancies: 5 (1 from each of the health authority regions)

• Date & Time: TBD. An initial in-person meeting in Vancouver will be scheduled for 1 day in early/mid September, depending on participant availability. (Proposed tentative dates: Sept 7 or

• Location: Vancouver BC (in person event), web-conferencing for the remainder of meetings.

• Commitment: September - December 2016. Following the initial meeting in Vancouver, working sessions will be conducted using WebEx and we will do our best to schedule these on days and at times that are amenable for all working group members - e.g. evenings, weekends if necessary.

Reimbursement

All travel-related expenses (e.g. transportation, hotels, meals) will be covered according to policies of the BC Academic Health Sciences Network (of which the BC SUPPORT Unit is a part).

Background

The BC SUPPORT Unit

This opportunity came about as part of the overall national Strategy for Patient-Oriented Research (SPOR) spearheaded by the Canadian Institutes of Health Research (CIHR). The BC SUPPORT Unit is being established in order to foster patient-oriented research in BC. The SUPPORT Unit model has a number of elements that may benefit from meaningful and active patient engagement.

Patient Oriented Research
Patient-oriented research is defined as research conducted in multidisciplinary teams that focuses on patient-identified priorities and engages patients meaningfully and actively in governance, topic generation and priority-setting, and/or along the continuum of the research process, including knowledge translation and dissemination

Meetings/Time Commitment

Starting with one full-day, in-person session where we would seek to do two things:

1. provide background about the BC Academic Health Sciences Network (AHSN), the Canadian Institutes of Health Research (CIHR) Strategy for Patient-Oriented Research (SPOR) and the BC Support for People and Patient-Oriented Research and Trials (SUPPORT) Unit;

2. begin a discussion of where and how patients can be engaged and what they feel a patient would need in terms of orientation, training, mentorship, etc. in order to be authentically engaged.

Followed by on-line working meetings facilitated through WebEx. Participants should expect to do some reading before the first in-person meeting and before subsequent WebEx meetings.

Contact & Application

RSVP by noon on August 12th

If you have additional questions about this volunteer opportunity, please contact:

Kira Tozer, Engagement Leader, Southern Vancouver Island

Office: 250-888-4525 | KTozer@bcpsqc.ca