PAN Parle on digital health - Jun 8, 2022 - recording

[A Former User]

We have 16 of us on a lively discussion about what we need to know as patient partners when we are on a digital health project.

Many issues around digital health came up around compassionate care, making sure no one is left out, cost of digital devices/internet and so on.

Take a look at the recording. We hope to have more of these discussions and would welcome any feedback on areas of focus. Cheers!

[A Former User]

Thanks for posting this. I wasn't able to attend but have just watched the recording. This is helpful as I've just been invited to participate in a virtual palliative care research group.

[A Former User]

thanks for sharing this Jim - is the palliative care group under CDHE or some other group? I did some work on home based palliative care when I was working for the Canadian Home Care Association and I would be happy to share that report with you, if you are interested. Also, I am helping the paramedic community with some competency standards work in this area - let me know what you are working on and perhaps we can share some info

[A Former User]

It will be for the Fraser Health Authority in BC and the position was advertised through ReachBC. Yes, please, I'd happily receive that report.
I will let you know when I hear back and receive more info.

[A Former User]

Jim, here is the link to the work I did at CHCA : https://cdnhomecare.ca/op-ex-mapping-the-palliative-care-experience/. CHCA has also published a report in 2021 on lessons learned during covid re: palliative care and that will include a focus on virtual care. I have attached pdf . Plus I would suggest looking at the updated Health Standards Organization (HSO) national standard on palliative care.
If you want to chat more via email, my address is: bank.jeanne@gmail.com
Fraser Health has been a leader in this work for many years - good luck

Home-and-Community-based-Palliative-Care-Shaping-the-Future-from-Lessons-Learned-during-the-COVID-19-Pandemic_JUN25.pdf

[A Former User]

Thanks, Jeanne for those resources. I look forward to spending some time reviewing the information.
Speaking of Fraser Health, I just reviewed a panel discussion from last year's HeartLife Foundation education day that featured a palliative care nurse from Fraser looking at advanced care planning. It was very helpful and gave me some exposure to what they are doing.